I keep looking for ways to try to heal and move forward living with my disability, Proteus Syndrome. It still remains difficult for me to accept this disability and embrace it. This is my Cross. I have always tried my hardest to overcome obstacles that stand in my way, to keep pushing forward, but the Proteus Syndrome has a life of its own and It’s taking over. I don’t like that, you know. It’s like I’m at war with it and I don’t want it to win. I hope this doesn’t sound too nutty. My mind and heart want to walk again but my body says. “No sir, your not going to do that”. It’s quite the challenge. I am always thinking of new ways to overcome these obstacles I face, but now the Proteus has got me homebound. This is really difficult to accept because I loved being with people and being a brother to everyone. I was a Capuchin-Franciscan for 12 years. I took my Solemn Vows in 1996. I had to leave though. I blame my disability. The burden it placed on my Order. The friars didn’t have health insurance back then and my disability is quite expensive. I am still a Capuchin in my heart though and I pray every day to Christ Jesus that He will not reject me because of that decision I made those many years ago. My heart will always remain with my Capuchin brothers. I still have a deep desire to help save souls for Christ, so I began the Hermits of the Holy Cross from home. It’s a ministry in the Church for the physically disabled who still want to serve the Church in some way. We serve spiritually, offering up to God our sufferings that stem from our disabilities. Our second gift we offer is intercessory prayer for our world, our parishes, our families and friends. We pray for those who even hurt us and reject us. So far, for me, I’ve only been laughed at and ridiculed. No one has ever tried to physically hurt me, thanks be to God. There are now five Hermits of the Holy Cross. One of our members recently passed away. May your soul rest in peace dear brother Charles. We live in different parts of the world, in Canada, New York, Texas and California. Our spirits are working together to help heal the world. We, with physical disabilities, have a gift to give the world. You too have a gift to give. Your heart for prayer and your sufferings offered for souls. Please, never forget this. God created us the way we are for His purposes. We are His children. We have gifts to share. These gifts might be spiritual like our suffering offered up or our prayers for others and for ourselves. So, in closing, I just wanted to reach out to you, my sisters and brothers, to help lift your hearts with encouragement. I want you to know I am with you in the struggle and that there are other Hermits praying for you. Keep climbing the mountain, keep holding on, in hope and love, to that cross you carry. Soon it will be traded for a crown. Have a most blessed week
Your brother in Christ Jesus,
Mark
Hermits of the Holy Cross